• The boys and I

  • A Little ‘Bout Me

    I’m 44, married and live in a sewerless small town on the central coast of California. I am an Inflammatory Breast Cancer survivor. My passions are reading, knowledge, shopping and photography – in varying order depending upon my mood. Though I’ve always wanted to be really good at something, I find that I’m just pretty good at most things. I live with my husband, Daddy-O, and our sons, Ben and Danny who are 10 and 5. Ben has ADHD and enough natural energy to power the Pacific Time Zone… and he’s not afraid to use it. Danny has Norries – a rare genetic disease causing him to be born blind. It’s a crazy, hectic life but I can’t complain any more than usual.
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Do you know who Ben Underwood is? We found out about him in 2006 when he did this interview with CBS News. As parents of a blind child you can imagine how astounded and encouraged we were.

At any rate, Ben Underwood had retinoblastoma when he was 2 and lost his eyes. Since, he has miraculously taught himself to echolocate by making a series of clicking noises like a dolphin. The videos of him rollerblading & playing basketball are nothing short of amazing.

I was very sad to catch the last bit of a news story on him Friday night that mentioned he is suffering a recurrence of his cancer. He is only 16 years old.


D is just beginning to show signs of echolocating. As I watch him manuver throughout the house he occasionally stomps his foot on the floor to “see” where he is. Even without the stomping he will come close to a wall or table, hesitate, and turn exactly parallel to it and continue walking. I used to have to prompt him to step down when there was a step coming up. Now he takes his cue from his environment. He has already anticipated the stair because I’ve taken the step already.

I find it amazing that at not quite 3 years old he has begun adapting to his environment in ways that we could never imagine.


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