• The boys and I

  • A Little ‘Bout Me

    I’m 44, married and live in a sewerless small town on the central coast of California. I am an Inflammatory Breast Cancer survivor. My passions are reading, knowledge, shopping and photography – in varying order depending upon my mood. Though I’ve always wanted to be really good at something, I find that I’m just pretty good at most things. I live with my husband, Daddy-O, and our sons, Ben and Danny who are 10 and 5. Ben has ADHD and enough natural energy to power the Pacific Time Zone… and he’s not afraid to use it. Danny has Norries – a rare genetic disease causing him to be born blind. It’s a crazy, hectic life but I can’t complain any more than usual.
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Just because I can

There are a few perks to having a blind son. One of them is that I can actually make socially awkward jokes about blindness and get away with it. And don’t think I don’t make use of that one at EVERY OPPORTUNITY.

My favorite, however, is Danny’s handicapped parking placard. Oh, the joy of preferred parking! Even through the shock of new diagnosis, that magical blue placard shone in our future like a bright silver lining.

I remember bringing it up on the car ride home from Children’s Hospital Los Angeles that horrible, awful June in 2005 when we first found out Danny would never see. At some point it dawned on me that he (we) would qualify for the coveted handicapped parking. I swear I held on to that thought like a life preserver for the longest time. The single bright spot in a very dark future.

Huh. In hindsight I can see how desperate I was for anything positive about our news. In reality, however, our lives with Danny are far from bleak or dismal. He quite literally lights up a room with his presence. Of course, my fear and desperation in no way diminishes the awesomeness of my recently acquired placard. ‘Tis truly spectacular!

We watched Blindsight as a family last night. If you are into documentaries or are just looking for something to make you feel like you should never complain again, this is the movie for you. What an amazing group of kids!

Blindsight follows a group of Tibetan teenagers on their journey to climb a mountain in the shadow of Everest. As a parent of a blind child, wow! I only hope for my son half that much freedom and adventurousness in his lifetime. Also, I was mortified by the treatment that blind people receive in Tibet. Save a worm. Squash a blind child’s spirit! Bah! Essentially, they believe the blind person must have done something horrible in their past life to be saddled with blindness in this. One old woman was quoted as saying to a blind teenager who got in her way that he “deserved to eat his father’s corpse!” And people say American’s lack compassion.

Otherwise a stellar movie. A must see. And, it is completely adapted for the VI.


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