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The boys and I
A Little ‘Bout Me

I’m 44, married and live in a sewerless small town on the central coast of California. I am an Inflammatory Breast Cancer survivor. My passions are reading, knowledge, shopping and photography – in varying order depending upon my mood. Though I’ve always wanted to be really good at something, I find that I’m just pretty good at most things. I live with my husband, Daddy-O, and our sons, Ben and Danny who are 10 and 5. Ben has ADHD and enough natural energy to power the Pacific Time Zone… and he’s not afraid to use it. Danny has Norries – a rare genetic disease causing him to be born blind. It’s a crazy, hectic life but I can’t complain any more than usual.
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I Can't Complain Any More Than Ususal
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Posted on July 1, 2015 by Stella

We are still here. We are still alive! Come visit us at our Facebook page! https://www.facebook.com/groups/963672507028675/

Filed under: Uncategorized |

Ashley, on May 10, 2017 at 6:02 pm said:

Hello! I am a mother of two beautiful boys who have Norries Disease. I am reaching out to hear your experience and a little bit of advice. My sons are only 2 and 2 months old. I would really appreciate your time. Its extremely hard to find anyone with any similar situations.
Sincerely,
Ashley

Reply
- Stella, on May 10, 2017 at 7:09 pm said:
  
  Ashley, we are all on Facebook. Search for Norrie Support Group. You will be a welcome addition
  
  Reply

I Can't Complain Any More Than Usual